Project: eHealth support to enhance self-management in men with prostate cancer

Project: eHealth support to enhance self-management in men with prostate cancer

This project address the difficulties prostate cancer patients experiences to be actively engaged in their self-care activities after treatment, by developing an eHealth application for patients – ePATH (electronic Patient Activation in Treatment at Home) intended to empower each patient to manage their individual situation at home. ePATH is a web and mobile application developed by employing a user-centered design process involving both patients and healthcare personnel in the development. ePATH makes it possible for a patient to manage symptoms development in relation to treatment progression. Interactive functionality, e.g., reminders and social support, is included to make the ePATH a useful and informative bridge between patients and different caregivers. ePATH will be tested for effectiveness, usability and relationship with organizational readiness and professionals work processes in a mixed qualitative and quantitative multicenter study in prostate cancer care in the southeast region of Sweden.

Project Manager
Mirjam Ekstedt
Project Members
Amanda Hellström, Linnéuniversitetet, Kristina Schildmeijer, Linnéuniversitetet, Camilla Wennerberg, Linnéuniversitetet, Lina Nilsson, Linnéuniversitetet, Carolina Wannhelden, Karolinska Institutet
Participating Organization
Linneuniversitetet, Karolinska Institutet, Institutionen för Lärande, Informatik, Management och Etik
Funding Organizations
Cancerstiftelsen i Kalmar Län; FORSS; Kalmar Läns Landsting; Cancerfonden
Timetable

The project started in 2015 and is implemented in three phases 2015-2016 needs assessment, 22016-2017 eHalth application development and user testing 2018 - 2019 testing and evaluation of intervention

More about the project

For men, prostate cancer is the most common cancer and a rapid increase is seen, with about 9 000 new patients every year in Sweden. Evidence-based methods for enhanced support for self-management in the prostate cancer trajectory is needed. The ePATH (electronic Patient Activation in Treatment at Home) intervention is developed specifically to users' needs and expectations, and to create effective communication on the basis of evidence described in literature reviews, and our own pre-studies, We draw on motivational and behavioral techniques that previously have been found to strengthen patient engagement and self-care capacity.
The overarching aim of the research project is to test the tailored e-health tool, ePATH, in a two-armed RCT on post-surgical outcomes (urinary incontinence and sexual function) for patients undergoing radical prostatectomy in an intervention group (ePATH+ standard care) compared with standard follow-up care group. Furthermore, this project will follow the implementation process over time, so that facilitators and barriers of implementation can be identified and made visible. This interdisciplinary research will be conducted in close collaboration with citizens (patients and families) and healthcare providers at the three study sites: the surgical and urological departments at Kalmar, Jönköping, and Kronoberg counties during 2018-2019.