Elizabeth Hanson
ProfessorProfessor in Caring Sciences with a focus on care of frail older people and support of their family carers and Scientific Leader of ‘Nationellt kompetenscentrum anhöriga’ (Swedish Family Care Competence Centre-SFCCC), a national centre of excellence in the field of informal care (see www.anhoriga.se). Visiting Reader at the University of Sheffield, School of Nursing & Midwifery, steering board member of the non-governmental organization (NGO) ‘Anhörigas Riksförbund’ (Carers Sweden) and the SFCCC’s contact person in Eurocarers, a European NGO consisting of national research centres and carer organisations from all 28 member states.
Trained as a general registered nurse and gained a BA (Hons.) Degree in Nursing at Sheffield Hallam University, UK (1986), secured my doctorate at the University of Lancaster, Department of Educational Research, exploring the support role of the oncology nurse in relation to persons with cancer and their families (1991). Post doc. at the Cancer Nursing Research Group at the Faculty of Nursing, University of Manitoba, Winnipeg, Canada (1993-5) headed up by Professor Lesley Degner and Assistant Professor (1991-6) in the faculty with teaching and supervision within palliative nursing care.
As Senior Lecturer in Nursing at the University of Sheffield, School of Nursing and Midwifery (1997-2000) I worked alongside Professor Mike Nolan in several major externally funded projects, including the EU funded ACTION project (Assisting Carers using Telematics Interventions to meet Older people’s Needs) focusing on the quality of life of frail older people and their family carers via the use of accessible Information and Communication Technologies (ICT).
Since 1997, I have actively worked with research and development work in the area of quality of life of older people with advanced long-standing chronic conditions, family (informal) care support and empowerment in research and practice. Moved to Sweden 2000 and supported the establishment of a regional research and development centre with a focus on older people and informal care in West Sweden - ÄldreVäst Sjuhärad now known as FoU-Sjuhärad Välfärd research centre.
In 2003, I secured a Senior Lecturer post at the University of Kalmar, now Linnaeus University, Department of Health and Caring Sciences. 2007 as co-investigator, secured a bid to establish a national centre of excellence in the field of informal care of older people which has subsequently been extended with external funding from the National Board of Health and Welfare Sweden and the Ministry of Health and Social Affairs to include parents and relatives of children with profound and complex disabilities, young carers, carers of people with mental-ill health and employers of working carers. I head up several collaborative research projects which are closely linked to the centre, the most recent of which includes work on behalf of Eurocarers within the INNOVAGE project, to develop web-based social support services for carers in Europe.
My ongoing research projects
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Project: Children as next of kin at school (CANOK) The "CANOK at school" project is about the empowerment and training of school nurses to identify those students (7-17 years old) who are experiencing…
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Project: WELL CARE The WELL CARE project focuses on improving the resilience and mental wellbeing of long-term care (LTC) workers and informal carers by strengthening care partnerships. The WELL CARE…
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Project: Young Kin – The mental wellbeing of children as next of kin The Young kin project is about the mental wellbeing of children as next of kin (CANOK). That is children whose parent (or other…
My completed research projects
Publications
Article in journal (Refereed)
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Nilsson, M., Andersson, S., Magnusson, L., Hanson, E. (2024). Keeping the older population and their informal carers healthy and independent using digital technology : a discourse analysis of local policy. Ageing & Society. 44 (4). 812-842.
Status: Published -
Brolin, R., Hanson, E., Magnusson, L., Lewis, F., Parkhouse, T., et al. (2024). Adolescent Young Carers Who Provide Care to Siblings. Healthcare. 12 (3).
Status: Published -
Johansson, M., Wåhlin, I., Magnusson, L., Hanson, E. (2024). The use and application of intensive care unit diaries: An instrumental multiple case study. PLOS ONE. 19 (2).
Status: Published -
Socci, M., Di Rosa, M., Quattrini, S., Lamura, G., Hanson, E., et al. (2024). The Impact of the Pandemic on Health and Quality of Life of Informal Caregivers of Older People : Results from a Cross-National European Survey in an Age-Related Perspective. Applied Research in Quality of Life. 19. 1385-1410.
Status: Published -
Andréasson, F., Mattsson, T., Hanson, E. (2023). ‘The balance in our relationship has changed’ : everyday family living, couplehood and digital spaces in informal spousal care. Journal of Family Studies. 29 (2). 719-737.
Status: Published -
Barbabella, F., Magnusson, L., Boccaletti, L., Casu, G., Hlebec, V., et al. (2023). Recruitment of Adolescent Young Carers to a Psychosocial Support Intervention Study in Six European Countries : Lessons Learned from the ME-WE Project. International Journal of Environmental Research and Public Health. 20 (6).
Status: Published -
Leu, A., Berger, F.M.P., Heino, M., Nap, H.H., Untas, A., et al. (2023). The 2021 cross-national and comparative classification of in-country awareness and policy responses to ‘young carers’. Journal of Youth Studies. 26 (5). 619-636.
Status: Published -
Hultqvist, S., Hanson, E., Jönson, H., Slaug, B., Iwarsson, S. (2023). “Why involve older people in research?” Revisiting Alan Walker’s earlier editorial based on recent experiences from the UserAge research programme. Research Involvement and Engagement. 9 (1).
Status: Published -
Hanson, E., Lewis, F., Barbabella, F., Hoefman, R., Casu, G., et al. (2023). Ethical Considerations When Conducting Pan-European Research with and for Adolescent Young Carers. Ethics and social welfare. 17 (2). 125-158.
Status: Published -
Watland, S., Nes, L.S., Hanson, E., Ekstedt, M., Stenberg, U., et al. (2023). The Caregiver Pathway, a Model for the Systematic and Individualized Follow-up of Family Caregivers at Intensive Care Units : Development Study. JMIR Formative Research. 7.
Status: Published -
Lewis, F.M., Becker, S., Parkhouse, T., Joseph, S., Hlebec, V., et al. (2023). The first cross-national study of adolescent young carers aged 15–17 in six European countries. International Journal of Care and Caring. 7 (1). 6-32.
Status: Published -
Guggiari, E., Fatton, M., Becker, S., Lewis, F., Casu, G., et al. (2023). Visibility as a Key Dimension to Better Health-Related Quality of Life and Mental Health : Results of the European Union Funded “ME-WE” Online Survey Study on Adolescent Young Carers in Switzerland. International Journal of Environmental Research and Public Health. 20 (5).
Status: Published -
Brolin, R., Hanson, E., Magnusson, L., Lewis, F., Parkhouse, T., et al. (2023). Adolescent Young Carers Who Provide Help and Support to Friends. Healthcare. 11 (21).
Status: Published -
Malm, C., Jönson, H., Andersson, S., Hanson, E. (2023). Exploring the knowledge contributions of carers involved in a group process aimed at co-creating a targeted support intervention. International Journal of Care and Caring. 7 (3). 479-497.
Status: Published -
Miller, E., Seddon, D., Toms, G., Hanson, E. (2023). Talking about what matters : a systematic search and review exploring barriers and facilitators for implementing outcome-focused conversations. International Journal of Care and Caring. 7 (4). 619-636.
Status: Published -
Allemann, H., Andréasson, F., Hanson, E., Magnusson, L., Jaarsma, T., et al. (2023). The co-design of an online support programme with and for informal carers of people with heart failure : A methodological paper. Journal of Clinical Nursing. 32 (19-20). 7589-7604.
Status: Published -
Santini, S., D’amen, B., Socci, M., Di Rosa, M., Hanson, E., et al. (2022). Difficulties and Needs of Adolescent Young Caregivers of Grandparents in Italy and Slovenia : A Concurrent Mixed-Methods Study. International Journal of Environmental Research and Public Health. 19 (5).
Status: Published -
Leu, A., Guggiari, E., Phelps, D., Magnusson, L., Nap, H.H., et al. (2022). Cross-national Analysis of Legislation, Policy and Service Frameworks for Adolescent Young Carers in Europe. Journal of Youth Studies. 25 (9). 1215-1235.
Status: Published -
Vicente, J., Mckee, K.J., Magnusson, L., Johansson, P., Ekman, B., et al. (2022). Informal care provision among male and female working carers : Findings from a Swedish national survey. PLOS ONE. 17 (3).
Status: Published -
D’amen, B., Socci, M., Di Rosa, M., Casu, G., Boccaletti, L., et al. (2022). Italian Adolescent Young Caregivers of Grandparents : Difficulties Experienced and Support Needed in Intergenerational Caregiving—Qualitative Findings from a European Union Funded Project. International Journal of Environmental Research and Public Health. 19 (1).
Status: Published -
Hanson, E., Barbabella, F., Magnusson, L., Brolin, R., Svensson, M., et al. (2022). Research and Innovation for and with Adolescent Young Carers to Influence Policy and Practice—The European Union Funded “ME-WE” Project. International Journal of Environmental Research and Public Health. 19 (16).
Status: Published -
Malm, C., Jonson, H., Andersson, S., Hanson, E. (2022). A balance between putting on the researcher's hat and being a fellow human being : a researcher perspective on informal carer involvement in health and social care research. Health Research Policy and Systems. 20 (1).
Status: Published -
Johansson, M.F., Mckee, K.J., Dahlberg, L., Williams, C.L., Meranius, M.S., et al. (2021). A comparison of spouse and non-spouse carers of people with dementia : a descriptive analysis of Swedish national survey data. BMC Geriatrics. 21 (1).
Status: Published -
Casu, G., Hlebec, V., Boccaletti, L., Bolko, I., Alessandra, M., et al. (2021). Promoting mental health and well‐being among adolescent young carers in Europe : a randomized controlled trial protocol. International Journal of Environmental Research and Public Health. 18 (4). 1-23.
Status: Published -
Malm, C., Andersson, S., Kylén, M., Iwarsson, S., Hanson, E., et al. (2021). What motivates informal carers to be actively involved in research, and what obstacles to involvement do they perceive?. Research Involvement and Engagement. 7 (1).
Status: Published -
Ekman, B., Mckee, K., Vicente, J., Magnusson, L., Hanson, E. (2021). Cost analysis of informal care : estimates from a national cross-sectional survey in Sweden. BMC Health Services Research. 21 (1).
Status: Published -
Santini, S., Socci, M., D’amen, B., Di Rosa, M., Casu, G., et al. (2020). Positive and Negative Impacts of Caring among Adolescents Caring for Grandparents : Results froman Online Survey in Six European Countries and Implications for Future Research, Policy and Practice. International Journal of Environmental Research and Public Health. 17 (18). 1-16.
Status: Published -
Nap, H.H., Hoefman, R., De Jong, N., Lovink, L., Glimmerveen, L., et al. (2020). The awareness, visibility and support for young carers across Europe : a Delphi study. BMC Health Services Research. 20 (1). 1-16.
Status: Published -
Hanson, E., Yghemonos, S. (2019). The Eurocarers Research Working Group meeting, Ancona, Italy, 26‐27 September 2019. International Journal of Care and Caring. 3 (4). 603-605.
Status: Published -
Iwarsson, S., Edberg, A., Dahlin Ivanoff, S., Hanson, E., Jönson, H., et al. (2019). Understanding User Involvement in Research in Aging and Health. Gerontology and geriatric medicine. 5 (eCollection). 1-10.
Status: Published -
Lethin, C., Hanson, E., Margioti, E., Chiatti, C., Gagliardi, C., et al. (2019). Support Needs and Expectations of People Living with Dementia and Their Informal Carers in Everyday Life : A European Study. Social Sciences. 8 (7).
Status: Published -
Andréasson, F., Aidemark, J., Magnusson, L., Strömberg, A., Hanson, E. (2019). Lifeworld in co-designing with informal carers. Journal of Enabling Technologies. 13 (1). 29-39.
Status: Published -
Malm, C., Andersson, S., Joenson, H., Magnusson, L., Hanson, E. (2019). Moving beyond the first response phenomenon : Exploring carers' views and experiences of being involved in research and development work. International journal of sociology and social policy. 39 (7-8). 627-643.
Status: Published -
Johansson, M., Wåhlin, I., Magnusson, L., Hanson, E. (2019). Nursing staff's experiences of intensive care unit diaries : a qualitative study. Nursing in Critical Care. 24 (6). 407-413.
Status: Published -
Andersson, S., Mckee, K., Magnusson, L., Erlingsson, C., Hanson, E. (2019). Valued and received forms of support among Swedish working carers of older people : a descriptive study with focus on ICT-mediated support. Technology and Disability. 31 (4). 189-202.
Status: Published -
Lindqvist, G., Hanson, E. (2018). Informal caregivers who are interested and do make use of information and communication technologies. Clinical Nursing Studies. 6 (4). 12-22.
Status: Published -
Lillo-Crespo, M., Riquelme, J., Macrae, R., De Abreu, W., Hanson, E., et al. (2018). Experiences of advanced dementia care in seven European countries : implications for educating the workforce. Global Health Action. 11 (1).
Status: Published -
Andréasson, F., Andreasson, J., Hanson, E. (2018). Developing a carer identity and negotiating everyday life through social networking sites : An explorative study on identity constructions in an online Swedish carer community. Ageing & Society. 38 (11). 2304-2324.
Status: Published -
Barbabella, F., Poli, A., Hanson, E., Andréasson, F., Salzmann, B., et al. (2018). Usage and Usability of a Web-based Program for Family Caregivers of Older People in Three European Countries : A Mixed-Methods Evaluation. Computers, Informatics, Nursing. 36 (5). 232-241.
Status: Published -
Johansson, M., Wåhlin, I., Magnusson, L., Runeson, I., Hanson, E. (2018). Family members' experiences with intensive care unit diaries when the patient does not survive. Scandinavian Journal of Caring Sciences. 32 (1). 233-240.
Status: Published -
Tolson, D., Holmerova, I., Macrae, R., Waugh, A., Hvalic-Touzery, S., et al. (2017). Improving Advanced Dementia Care : An Interprofessional Palliare Learning Framework. Journal of the American Medical Directors Association. 18 (7). 561-563.
Status: Published -
Andersson, S., Erlingsson, C., Magnusson, L., Hanson, E. (2017). The experiences of working carers of older people regarding access to a web-based family care support network offered by a municipality. Scandinavian Journal of Caring Sciences. 31 (3). 487-496.
Status: Published -
Bergman, A., Axberg, U., Hanson, E. (2017). When a parent dies : a systematic review of the effects of support programs for parentally bereaved children and their caregivers. BMC Palliative Care. 16. 1-15.
Status: Published -
Carlsund, Å., Johansson, P., Hammare, U., Hanson, E. (2017). Support for children as next of kin and systematic follow up : group leaders’ and managers’ perspectives within non-profit organizations in Sweden. Open Family Studies Journal. 9. 49-59.
Status: Published -
Hanssen, H., Norheim, A., Hanson, E. (2017). How can web-based training facilitate a more carer friendly practice in community-based health and social care services in Norway? : staff experiences and implementation challenges. Health & Social Care in the Community. 25 (2). 559-568.
Status: Published -
Bergström, A.L., Hanson, E. (2017). An integrative review of information and communication technology based support interventions for carers of home dwelling older people. Technology and Disability. 29 (1-2). 1-14.
Status: Published -
Järkestig Berggren, U., Hanson, E. (2016). Children as next of kin : a scoping review of support interventions for children who have a parent with a serious physical illness. Child Care in Practice. 22 (3). 277-295.
Status: Published -
Andersson, S., Magnusson, L., Hanson, E. (2016). The use of information and communication technologies to support working carers of older people : a qualitative secondary analysis. International Journal of Older People Nursing. 11 (1). 32-43.
Status: Published -
Lindqvist, G., Hanson, E. (2016). Conceptions of everyday life among people living alone with chronic obstructive pulmonary disease. Clinical Nursing Studies. 4 (2). 8-20.
Status: Published -
Tolson, D., Fleming, A., Hanson, E., Abreu, W., Lillo Crespo, M., et al. (2016). Achieving Prudent Dementia Care (Palliare) : an International Policy and Practice Imperative. International Journal of Integrated Care. 16 (4). 1-11.
Status: Published -
Barbabella, F., Poli, A., Andréasson, F., Salzmann, B., Papa, R., et al. (2016). A web-based psychosocial intervention for family caregivers of older people : results from a mixed-methods study in three European countries. JMIR Research Protocols. 5 (4). 1-16.
Status: Published -
Efthymiou, A., Vlachogiann, A., Nika, A., Barbabella, F., Poli, A., et al. (2015). Web services for Greek informal carers. Hellenic Journal of Nuclear Medicine. 18. 51-53.
Status: Published -
Hammar, T., Ohlson, M., Hanson, E., Petersson, G. (2015). Implementation of information systems at pharmacies – a case study from the re-regulated pharmacy market in Sweden. Research in Social and Administrative Pharmacy. 11 (2). E85-E99.
Status: Published -
Wilder, J., Magnusson, L., Hanson, E. (2015). Professionals’ and parents’ shared learning in blended learning networks related to communication and augmentative and alternative communication for people with severe disabilities. European Journal of Special Needs Education. 30 (3). 367-383.
Status: Published -
Andréasson, F., Hanson, E., Lancioni, C., Papa, R., Barbabella, F., et al. (2015). The INNOVAGE-Eurocarers platform and current ICT-based services for informal carers of older people in Sweden. Irish Ageing Studies Review. 6 (1). 88-88.
Status: Published -
Johansson, M., Hanson, E., Runeson, I., Wåhlin, I. (2015). Family members’ experiences of keeping a diary during a sick relative’s stay in the intensive care unit : A hermeneutic interview study. Intensive & Critical Care Nursing. 31 (4). 241-249.
Status: Published -
Efthymiou, A., Poli, A., Döhner, H., Hanson, E., Barbabella, F., et al. (2015). The role of Eurocarers in promoting web-based support services for informal carers in Europe. Irish Ageing Studies Review. 6 (1). 88-89.
Status: Published -
Magnusson, L., Sandman, L., Rosén, K.G., Hanson, E. (2014). Extended safety and support systems for people with dementia living at home. Journal of Assistive Technologies. 8 (4). 188-206.
Status: Published -
Torp, S., Bing-Jonsson, P., Hanson, E. (2013). Experiences with using information and communication technology to build a multi-municipal support network for informal carers. Informatics for Health and Social Care. 38 (3). 265-279.
Status: Published -
Erlingsson, C., Magnusson, L., Hanson, E. (2012). Family Caregivers’ Health in connection with providing care. Qualitative Health Research. 22 (5). 640-655.
Status: Published -
Magnusson, L., Hanson, E. (2012). Partnership working: : The key to the AT-technology transfer process of the ACTION service (Assisting Carers using Telematics Interventions to meet Older people's Needs) in Sweden. Technology and Disability, Special Issue. 24 (3). 219-232.
Status: Published -
Hanson, E., Magnusson, L., Sennemark, E. (2011). Blended Learning Networks Supported by Information and Communication Technology : An Intervention for Knowledge Transformation Within Family Care of Older People. The Gerontologist. 51 (4). 561-570.
Status: Published -
Ducharme, F., Lévesque, L., Caron, C., Hanson, E., Magnusson, L., et al. (2010). [A useful test for evaluating the needs for support of family members--help for an aged parent at home: a tool with potential application in French-speaking Europe]. Recherche en soins infirmiers. 101. 67-68.
Status: Published -
Levesque, L., Ducharme, F., Caron, C., Hanson, E., Magnusson, L., et al. (2010). A partnership approach to service needs assessment with family caregivers of an aging relative living at home: A qualitative analysis of the experiences of caregivers and practitioners. International Journal of Nursing Studies. 47 (7). 876-887.
Status: Published -
Ducharme, F., Lévesque, L., Caron, C., Hanson, E., Magnusson, L., et al. (2009). Validation d'un outil pour les proches-aidants : Validation of a tool for family caregivers. Recherche en soins infirmiers. 97. 63-73.
Status: Published -
Torp, S., Hanson, E., Hauge, S., Ulstein, I., Magnusson, L. (2008). A pilot study of how information and communication technology may contribute to health promotion among elderly spousal carers in Norway. Health & Social Care in the Community. 16 (1). 75-85.
Status: Published -
Hanson, E., Magnusson, L., Nolan, J. (2008). Swedish experiences of a negotiated approach to carer assessment: the Carers Outcome Agreement Tool. Journal of Research in Nursing. 13 (5). 391-407.
Status: Published -
Savolainen, L., Hanson, E., Magnusson, L., Gustavsson, T. (2008). An Internet-based videoconferencing system for supporting frail elderly people and their carers. Journal of Telemedicine and Telecare. 14. 79-82.
Status: Published -
Hanson, E., Magnusson, L., Arvidsson, H., Claesson, A., Keady, J., et al. (2007). Working together with persons with early stage dementia and their family members to design a user-friendly technologybased support service. Dementia. 6 (3). 411-434.
Status: Published -
Clarke, A., Hanson, E., Ross, H. (2003). Seeing the person behind the patient: enhancing the care of older people using a biographical approach. Journal of Clinical Nursing. 12 (5). 697-706.
Status: Published -
Magnusson, L., Hanson, E., Nolan, M. (2002). Assisting carers using the ACTION model for working with family carers. British Journal of Nursing. 11 (11). 759-763.
Status: Published
Conference paper (Refereed)
- Johansson, P., Magnusson, L., Boccaletti, L., Hlebec, V., Alves, B., et al. (2021). Innovative School Education Methodologies and Tools for Guaranteeing Social Inclusion of Young Carers (EDY-CARE-project). Presented at the 3rd International Young Carers conference, Online, May 3-6, 2021, 2021.
- Malm, C., Hanson, E., Andersson, S. (2019). Carers' views and experiences of the co-creation of a national carer strategy. Presented at the International Association of Gerontology and Geriatrics European Region Congress 2019, Gothenburg, Sweden, May 23-25, 2019, 2019.
- Santini, S., Socci, M., Boccaletti, L., D’amen, B., Becker, S., et al. (2019). Adolescent young caregivers of older, sick or disabled family members : evidence from the ‘ME-WE’ European project online survey in Italy. Presented at the International Association of Gerontology and Geriatrics European Region Congress 2019, Gothenburg, Sweden, May 23-25, 2019.
- Hanson, E., Magnusson, L. (2019). Quality of long term care from a carer perspective : a commissioned study to inform the national quality plan for care of older people in Sweden. Presented at the International Association of Gerontology and Geriatrics European Region Congress 2019, Gothenburg, Sweden, May 23-25, 2019, 2019.
- Hanson, E., Magnusson, L. (2019). Young carer involvement in the EU H2020 ME-WE project. Symposium presentation at "It takes a village..." International Conference: Families experiencing substance abuse, mental or physical health problems, Oslo, Norway, May 14-16, 2019.
- Andréasson, F., Hanson, E., Poli, A., Barbabella, F., Lancioni, C., et al. (2016). The use of on-line social network and services by family carers with high digital skills : The case of the Swedish sample. .
- Iwarsson, S., Kylberg, M., Phillips, J., Hanson, E., Magnusson, L., et al. (2016). On user participation in ageing research. Presented at the 23rd Nordic Congress of Gerontology (23 NKG), Tampere, Finland, June 20-22, 2016.
- Andréasson, F., Hanson, E., Lancioni, C., Papa, R., Barbabella, F., et al. (2015). The INNOVAGE-Eurocarers platform and current ICT-based services for informal carers of older people in Sweden. .
- Andréasson, F., Hanson, E., Lancioni, C., Papa, R., Barbabella, F., et al. (2015). Online support for carers : using a social forum and social network as a means of developing the role of informal caregiving. Presented at the 6th International Carers Conference - Care and caring: future proofing the new demographics, Gothenburg, Sweden, September 3-6, 2015.
- Månsson Lexell, E., Pettersson, C., Hanson, E. (2015). Interventions for stroke family caregivers : a systematic review of the literature. Presented at the The 6th International Carers Conference - Care and caring: future proofing the new demographics, Gothenburg, Sweden, September 3-6, 2015.
- Järkestig Berggren, U., Hanson, E. (2015). Support for children and their families when a parent is seriously ill. The 6th International Carers Conference - Care and caring: future proofing the new demographics, Gothenburg, Sweden, September 3-6, 2015.
- Järkestig Berggren, U., Hanson, E. (2015). Support for children and their families when a parent is serously ill : a review of research. NNDR - Nordic Network on Disability Research, May 6-8, 2015, Bergen.
- Barbabella, F., Efthymiou, A., Poli, A., Lancioni, C., Andréasson, F., et al. (2015). A multilingual web platform supporting informal carers in 27 EU member states. Broader, bigger, better: AAL solutions for Europe. Proceedings of the 6th AAL Forum 2014. 169-172.
- Yghemonos, S., Hanson, E. (2015). Eurocarers : carer organisations and research organisations working together to ensure evidence-based policy making at EU level. Presented at the 6th International Carers Conference - Care and caring: future proofing the new demographics, Gothenburg, Sweden, September 3-6, 2015.
- Bergman, A., Hanson, E. (2015). Bereavement for children when a parent dies. Presented at the 6th International Carers Conference - Care and caring: future proofing the new demographics, Gothenburg, Sweden, September 3-6, 2015.
- Hanson, E. (2015). Building communities of support with the help of Information and Communication Technology (ICT). Presented at the DISCOVER EC ICT PSP project, Final conference, London, UK, February 24, 2015.
- Hanson, E. (2015). Combining work and care-themed plenary. Presented at the 6th International Carers Conference - Care and caring: future proofing the new demographics, Gothenburg, Sweden, September 3-6, 2015.
- Erlingsson, C., Magnusson, L., Hanson, E. (2009). Health of informal family caregivers in Sweden. .
Article, review/survey (Refereed)
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Nilsson, M., Andersson, S., Magnusson, L., Hanson, E. (2021). Ambient Assisted Living technology-mediated interventions for older people and their informal carers in the context of healthy ageing : A scoping review. Health Science Reports. John Wiley & Sons. 4 (1).
Status: Published -
Papa, R., Efthymiou, A., Lamura, G., Piccinini, F., Onorati, G., et al. (2020). Review and Selection of Online Resources for Carers of Frail Adults or Older People in Five European Countries : Mixed-Methods Study. JMIR mhealth and uhealth. JMIR Publications, Inc. 8 (6).
Status: Published -
Hanson, E., Hellström, A., Sandvide, Å., Jackson, G.A., Macrae, R., et al. (2019). The extended palliative phase of dementia : an integrative literature review. Dementia. Sage Publications. 18 (1). 108-134.
Status: Published -
Ewertzon, M., Hanson, E. (2019). Support interventions for family members of adults with mental illness : a narrative literature review. Issues in Mental Health Nursing. Taylor & Francis. 40 (9). 768-780.
Status: Published -
Andersson, S., Erlingsson, C., Magnusson, L., Hanson, E. (2017). Information and communication technology-mediated support for working carers of older family members : an integrative literature review. International Journal of Care and Caring. Policy Press. 1 (2). 247-273.
Status: Published
Article in journal (Other academic)
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Hanson, E., Starr, M. (2017). Care and caring : future-proofing the new demographics (The 6th International Carers Conference). International Journal of Care and Caring. 1 (1). 143-146.
Status: Published -
Andréasson, F., Andreasson, J., Hanson, E. (2017). Developing a carer identity and negotiating everyday life through social networking sites. Innovation in Aging. 1 (Suppl_1). 465-466.
Status: Published -
Hanson, E., Magnusson, L. (2011). The role of ICT support services to promote ageing in place : The ACTION service. Eurohealth. 17 (2-3). 24-26.
Status: Published
Conference paper (Other academic)
- Johansson, P., Sennemark, E., Magnusson, L., Hanson, E. (2021). Children-as-next-of-kin and the Covid-19 pandemic. How have they been affected?. Presented at the 3rd International Young Carers conference, Online, May 3-6, 2021, 2021.
- Hanson, E. (2018). Understanding user participation in research on ageing and health. Presented at the 24th Nordic Congress of Gerontology, Oslo, Norway, May 2-4, 2018.
- Hanson, E., Magnusson, L. (2017). Understanding carer health and well-being. Presented at the 21st IAGG World Congress of Gerontology and Geriatrics, San Francisco, California, USA, July 23-27, 2017.
- Hanson, E., Edberg, A., Dahlin Ivanoff, S., Iwarsson, S. (2017). Understanding user participation in research : methodological considerations. Presented at the 21st IAGG World Congress of Gerontology and Geriatrics, San Francisco, California, USA, July 23-27, 2017.
- Magnusson, L., Hanson, E. (2016). Metoder för att utveckla stöd till anhöriga. .
- Hanson, E., Magnusson, L. (2016). Children as Next of Kin : results of research and development work and policy impact on Young Carers - focus on ‘children as next of kin’. .
- Hanson, E., Magnusson, L. (2016). Piloting Information and Communication Technology based services to reach out and support working carers. .
- Magnusson, L., Hanson, E. (2016). Vad vet vi om äldre sjuka personers anhöriga/närstående, hur de har det och hur de tar det?. .
Book (Other academic)
- Nolan, M., Hanson, E., Grant, G., Keady, J. (2007). User participation in health and social care research : Voies, values and evaluation. Maidenhead, Open University Press.
Chapter in book (Other academic)
- Aldman, L., Sennemark, E., Hanson, E. (2024). 3: Sweden. Combining Work and Care : Carer Leave and Related Employment Policies in International Context. Bristol, Policy Press. 50-78.
- Hanson, E., Champeix, C. (2023). Informal Caregivers : The Advocacy and Policy Perspective. Informal Caregivers : From Hidden Heroes to Integral Part of Care. Springer. 173-188.
- Hanson, E. (2023). Caring for the Informal Carer : Coping in Caregiving. Informal Caregivers : From Hidden Heroes to Integral Part of Care. Springer. 81-95.
- Hlebec, V., Hanson, E., Rakar, T. (2022). Impact of the Covid-19 pandemic on adolescent Young Carers in Slovenia. Quality of Life in COVID-19 pandemic: A kaleidoscope of challenges and responses of various population groups during the crisis. Ljubljana, University of Ljubljana, Faculty of Social Sciences. 170-185.
- Hanson, E., Sennemark, E., Magnusson, L. (2019). Anhörigas delaktighet och behov. Hemsjukvård : olika perspektiv på trygg och säker vård. Stockholm, Liber. 209-226.
- Hagberg, P., Johansson, P., Nordqvist, E., Hanson, E. (2017). Styrkor och färdigheter som möjligheter i utbildning och arbete för unga omsorgsgivare med minoritets- och utländsk bakgrund. Tearing down barriers to employment & education : for young, black and minority ethnic carers: national reports. London, IARS Publications. 105-124.
- Järkestig Berggren, U., Hanson, E. (2015). Stöd till barn när en förälder är allvarligt fysiskt sjuk. Att se barn som anhöriga-om beroende i relationer, interventioner och omsorgsansvar : Antologi. Kalmar, Nka, Linnéuniversitetet. 179-198.
- Bergman, A., Hanson, E. (2015). Stöd till barn när en förälder avlider. Att se barn som anhöriga - om beroende i relationer, interventioner och omsorgsansvar : Antologi. Kalmar/Växjö, Nationellt kompetenscentrum anhöriga, Linnéuniversitetet. 201-227.
- Hanson, E., Nolan, M., Magnusson, L. (2011). User involvement in research and development in health and social welfare : some key concepts and their application using a relational approach. Brukarens roll i välfärdsforskning och utvecklingsarbete. Borås, Högskolan i Borås. 21-32.
- Hanson, E., Magnusson, L., Nolan, M. (2011). Using the ÄldreVäst Sjuhärad model to judge the quality of user involvement work within the COAT (Carers Outcome Agreement Tool) implementation project. Brukarens roll i välfärdsforskning och utvecklingsarbete. Borås, Högskolan i Borås. 213-235.
- Hanson, E., Magnusson, L., Svensson, P., Arvevik, F., Arvidsson, H., et al. (2011). The ACTION service : Experiences of user involvement within research and development work within care for older people. Brukarens roll i välfärdsforskning och utvecklingsarbete. Borås, Högskolan i Borås. 183-199.
- Hanson, E., Svensson, P., Arvevik, F., Magnusson, L. (2007). ACTION (Assisting Carers using Telematic Interventions to meet Older people’s Needs):practioners´reflections on a Swedish innovation. User participation in helath and social care research : voices, values and evaluation. Maidenhead, Open University Press. 14-32.
Report (Other academic)
- Johansson, P., Sennemark, E., Magnusson, L., Hanson, E. (2021). Konsekvenser av Covid-19-pandemin för barn som anhöriga och unga omsorgsgivare. Nationellt kompetenscentrum anhöriga. 28.
- Magnusson, L., Sennemark, E., Ekman, B., Johansson, P., Hanson, E. (2021). Konsekvenser av covid‐19‐pandemin för anhöriga som ger vård, hjälp och stöd till en närstående. Nationellt kompetenscentrum anhöriga. 25.
- Sennemark, E., Magnusson, L., Hanson, E., Larsson Skoglund, A. (2019). Vad tänker anhöriga om fall och fallprevention? : En kunskapsöversikt och samtal med anhöriga. Kalmar, Sweden, Nationellt kompetenscentrum anhöriga. 42.
- Leu, A., Phelps, D., Guggiari, E., Berger, F., Wirth, A., et al. (2018). D2.1 Final report on case study analysis of policy, legal and service frameworks in six countries : ME-WE project deliverable. Kalmar, Linnaeus University. 146.
- Magnusson, L., Sennemark, E., Hanson, E. (2018). Rapport om nationell anhörigstrategi : några konkreta förslag. Kalmar, Sweden, Nationellt kompetenscentrum anhöriga. 47.
- Herman Nap, H., De Jong, N., Lovink, L., Glimmerveen, L., Van Den Boogaard, M., et al. (2018). D3.1 Consolidated strategy and theory report : ME-WE project deliverable. Kalmar, Linnaeus University. 289.
- Hellström, I., Sandberg, J., Hanson, E., Öhlén, J. (2017). Stöd till anhöriga i samband med palliativ vård i hemmet : en kunskapsöversikt. Kalmar, Nationellt kompetenscentrum anhöriga. 78.
- Hjern, A., Berg, L., Arat, A., Klöfvermark, J., Manhica, H., et al. (2017). Children as next of kin in Sweden. Kalmar, Nationellt kompetenscentrum anhöriga. 31.
- Bergman, A., Hanson, E. (2016). Effekter av anknytningsbaserade interventioner för yngre barn och deras omvårdnadspersoner : En kunskapsöversikt. Kalmar/Växjö, Nationellt kompetenscentrum anhöriga. 112.
- Ericsson, I., Persson, M., Hanson, E. (2016). Anhöriga till äldre personer med psykisk ohälsa. Kalmar, Nationellt kompetenscentrum anhöriga. 70.
- Nordqvist, E., Eliasson, C., Hanson, E. (2016). Unga omsorgsgivare med minoritets- och utländsk bakgrund. Kalmar, Nationellt kompetenscentrum anhöriga. 36.
- Järkestig Berggren, U., Hanson, E. (2016). Stödprogram riktade till barn och/eller föräldrar när en förälder missbrukar alkohol eller andra droger - en kunskapsöversikt. Kalmar, Nationellt kompetenscentrum anhöriga. 140.
- Winqvist, M., Magnusson, L., Beijer, U., Göransson, S., Takter, M., et al. (2016). Stöd till anhöriga. Erfarenheter från åtta kommuner 2010–2013. Slutrapport. Kalmar, Nationellt kompetenscentrum anhöriga. 159.
- Magnusson, L., Hanson, E., Larsson Skoglund, A., Ilett, R., Sennemark, E., et al. (2016). Kvalitet i äldreomsorg ur ett anhörigperspektiv. Kalmar, Nationellt kompetenscentrum anhöriga. 106.
- Barbabella, F., Efthymiou, A., Poli, A., Döhner, H., Hanson, E., et al. (2015). Deliverable D3.2 Publication of the final implementation of the web platform. Brussels, InnovAge project, EU 7th Framework, Social Innovations promoting active and healthy ageing.
- Bergman, A., Hanson, E. (2015). Effekt av metoder för stöd till barn när en förälder avlider : Kortversion av Kunskapsöversikt 2014:1. Kalmar, Nationellt kompetenscentrum anhöriga. 30.
- Sandvide, Å., Hanson, E., De Abreu, W., Jackson, G., Waugh, A., et al. (2015). Dementia Palliare : Literature Review – Experiences of Advanced Dementia. University of the West of Scotland.
- Holmerova, I., Waugh, A., Macrae, R., Vepřková, R., Sandvide, Å., et al. (2015). Dementia Palliare Best Practice Statement, Erasmus+ EU. University of the West of Scotland. 20.
- Magnusson, L., Hanson, E. (2015). Barn som anhöriga : rapport från Linnéuniversitetets och Nationellt kompetenscentrum anhörigas arbete, 2012 - 2014. Kalmar, Nationellt kompetenscentrum anhöriga, Linnéuniversitetet. 21.
- Lindqvist, G., Magnusson, L., Andréasson, F., Broling, L., Hanson, E. (2015). Slutrapport SAFE, Steg 1. Utmaningsdriven innovation: Hälso- och sjukvård : Ökad delaktighet och inflytande, trygghet och säkerhet för äldre och deras anhöriga med hälsostödjande e-tjänster. VINNOVA. 14.
- Bergman, A., Hanson, E. (2014). Barn som är anhöriga när en förälder avlider : en kunskapsöversikt om effekt av metoder för stöd till barn. Kalmar, Nationellt kompetenscentrum anhöriga. 112.
- Järkestig Berggren, U., Hanson, E. (2013). Barn som är anhöriga till föräldrar med allvarlig fysisk sjukdom eller skada : En kunskapsöversikt om metoder för att ge stöd till barn. Kalmar, Nationellt kompetenscentrum anhöriga. 63.
- Barbabella, F., Efthymiou, A., Lancioni, C., Döhner, H., Goodwin, F., et al. (2013). Deliverable D3.1 Report on the web-based support specification. Brussels, InnovAge project, EU 7th Framework, Social Innovations promoting active and healthy ageing.
- Mathény, G., Olofsson, C., Rutbäck, S., Hanson, E. (2012). Teknikstöd för yrkesverksamma anhöriga : en behovsstudie. Kalmar, Nationellt kompetenscentrum anhöriga. 102.
- Andersson, G., Hanson, E. (2012). Livskvalitet hos anhöriga som vårdar en äldre närstående med inkontinens : En svensk delrapport av ett EU-projekt initierad av SCA och Eurocarers. Kalmar, Nationellt kompetenscentrum anhöriga. 42.
- Andersson, S., Magnusson, L., Hanson, E. (2012). Teknikstöd för yrkesverksamma anhöriga : resultat från utvärdering av tre projekt inom programmet Teknik för äldre II. Kalmar, Nationellt kompetenscentrum anhöriga. 88.
- Hanson, E., Magnusson, L. (2012). Anhörig och brukarrevision inom demensvård : en modell för utveckling i samverkan.
- Winqvist, M., Magnusson, L., Bergström, I., Beyhammar, K., Eriksson, B., et al. (2012). Stöd till anhöriga : erfarenheter från åtta kommuner 2010-2012. Kalmar, Nationellt kompetenscentrum anhöriga. 199.
- Van Der Veen, R., Versteeg, M., Mak, S., Bodnarova, B., Selestiakova, K., et al. (2011). Quality of life of carers managing incontinence in Europe, : Final project report. Dublin, Eurocarers, SCA, Sweden. 119.
- Schmidt, A., Carlos, C., Fry, G., Hanson, E., Magnusson, L., et al. (2011). Deliverable 2.3: Analysis and Mapping of 52 ICT-based initiatives for caregivers. Vienna, European Centre for Social Welfare Policy and Research. 299.
- Barbabella, F., Hoffmann, F., Rodrigues, R., Schmidt, A., Chiatti, C., et al. (2011). Deliverable 3.6: Final report on the “Methodological Framework”. Vienna, European Centre for Social Welfare Policy and Research. 228.
- Chiatti, C., Fry, G., Hanson, E., Magnusson, L., Socci, M., et al. (2011). Deliverable 4.3 : Final report containing case-by case detailed description and analysis of 12 good practices. Vienna, European Centre for Social Welfare Policy and Research. 158.
- Erlingsson, C., Magnusson, L., Hanson, E. (2010). Anhörigvårdares hälsa. Kalmar, Nationellt kompetenscentrum Anhöriga/Fokus Kalmar län. 72.
- Magnusson, L., Hanson, E., Larsson Skoglund, A. (2009). Införande av en modell och instrument för att kartlägga behov och planera ett individuellt anpassat stöd för anhörigvårdare i Jönköpings kommun - slutrapport för perioden 060101 - 081231. Borås, FoU Sjuhärad Välfärd. 30.
- Hanson, E., Magnusson, L., Ärnström, U. (2009). Teknik för anhöriga som hjälper och vårdar : On a bicycle made for two. Behovsstudie. Vällingby, Hjälpmedelsinstitutet. 34.
- Magnusson, L., Hanson, E., Walkhamre, B., Larsson Skoglund, A. (2009). Införande av en modell och instrument för att kartlägga behov och planera ett individuellt anpassat stöd för anhörigvårdare i Borås Stad - slutrapport för perioden 060118 - 081231. Borås, FoU Sjuhärad Välfärd. 73.
- Hanson, E., Magnusson, L., Ärnström, U. (2009). Utbildningsmaterial om partnerskap och anhörigvård, lärdomar och röster från lärande nätverk i sex kommuner. Kalmar, eHälsoinstitutet, Högskolan i Kalmar.
- Fagerberg, Å., Moberg, A., Magnusson, L., Hanson, E. (2007). Införande av en modell och instrument för att kartlägga behov och planera ett individuellt anpassat stöd för anhörigvårdare i Varbergs kommun : Delrapport till Länsstyrelsen i Hallands län för perioden 060118 - 061231. Varberg, Varbergs kommun.
- Christensen, C., Sennemark, E., Moberg, A., Magnusson, L., Hanson, E. (2007). Införande av systematisk planering och uppföljning av anhörigstöd med hjälp av COAT : Delrapport till Länsstyrelsen i Skåne län för perioden 060118 - 070118. Malmö, Malmö stad.
- Hanson, E., Winqvist, I., Magnusson, L., Sennemark, E. (2007). Meningsfull vardag i särskilt boende i Sjuhärad. Borås, Högskolan i Borås. 106.
- Hanson, E., Magnusson, L., Eriksson, I., Borg, A., Kjelleryd, H., et al. (2007). ACTION - working in partnership to improve healthcare and social welfare services for older people and their family carers via ICT. : [ACTION – arbete i partnerskap för ökad vård och omsorgskvalitet.].
Collection (editor) (Other academic)
- Järkestig Berggren, U., Magnusson, L., Hanson, E. (2015). Att se barn som anhöriga - om beroende i relationer, interventioner och omsorgsansvar : Antologi. Kalmar/Växjö, Nka, Linnéuniversitetet. 380.
Manuscript (preprint) (Other academic)
- Johansson, M., Wåhlin, I., Magnusson, L., Hanson, E. (2019). The use and application of intensive care unit diaries : an instrumental multiple case study.
Article in journal (Other (popular science, discussion, etc.))
-
Hanson, E., Magnusson, L., Amilon, K. (2009). E-tjänster öppnar nya världar. Äldreomsorg. (3).
Status: Published -
Magnusson, L., Hanson, E., Gough, R. (2009). Ett centrum för samlad kompetens. Äldreomsorg. (3).
Status: Published
Conference paper (Other (popular science, discussion, etc.))
- Boustedt Hedvall, M., Johansson, P., Lundström, A., Magnusson, L., Hanson, E. (2021). A ten-year national strategic collaboration to support children-as-next-of-kin in Sweden - What have we done so far?. Presented at the 3rd International Young Carers conference, Online, May 3-6, 2021.
- Strömberg, A., Motel-Klingebiel, A., Hanson, E., Poli, A., Aidermark, J. (2016). Self-care and technology in older people with long-term conditions : new challenges for ICT. .
- Andréasson, F., Hanson, E., Lamura, G., Barbabella, F., Lancioni, C., et al. (2015). Anhörigstöd via internet : InformCare. .
- Andréasson, F., Hanson, E. (2015). Dissemination event Sweden. .
Chapter in book (Other (popular science, discussion, etc.))
- Johansson, P., Brolin, R., Magnusson, L., Hanson, E. (2023). Barn som anhöriga och unga omsorgsgivare. Stora anhörigboken. Lund, Studentlitteratur AB. 67-105.
Report (Other (popular science, discussion, etc.))
- Hanson, E., Magnusson, L. (2010). ACTION – arbete i partnerskap för ökad vård och omsorgskvalitet : Progressrapport för VINNVÅRD. Stockholm, Vårdalstiftelsen.
- Hanson, E., Magnusson, L., Hedin, U., Gunnhilstam, O. (2010). Slutrapport för projektet ACTION - "Att leva med demens" - en modell/system för utbildning och stöd med hjälp av IKT. Dnr: 2005/0238. Borås, Högskolan i Borås.
- De Bie Widéhn, N., Nichlasson, M., Magnusson, L., Svensson, P., Hanson, E. (2009). BLANDADE LÄRANDE NÄTVERK - arbete i partnerskap för att förbättra vård- och omsorgstjänster till äldre och deras anhörigvårdare via informations- och kommunikationsteknologi. Kalmar, eHälsoinstitutet Högskolan i Kalmar.