Publications
Article in journal (Refereed)
- Axelsson, L., Benzein, E., Lindberg, J., Persson, C. (2019). End-of-life and palliative care of patients on maintenance hemodialysis treatment : a focus group study. BMC Palliative Care. 18. 1-10.
- Rahmqvist Linnarsson, J., Benzein, E., Erlingsson, C. (2019). Challenges of caring for victims of violence and their family members in the emergency department. International Emergency Nursing. 42. 2-6.
- Bylund-Grenklo, T., Werkander Harstäde, C., Sandgren, A., Benzein, E., Östlund, U. (2019). Dignity in life and care : the perspectives of Swedish patients in a palliative care context.. International Journal of Palliative Nursing. 25. 193-201.
- Wallerstedt, B., Benzein, E., Schildmeijer, K., Sandgren, A. (2019). What is palliative care? : Perceptions of healthcare professionals. Scandinavian Journal of Caring Sciences. 33. 77-84.
- Möllerberg, M., Årestedt, K., Swahnberg, K., Benzein, E., Sandgren, A. (2019). Family sense of coherence and its associations with hope, anxiety and symptoms of depression in persons with cancer in palliative phase and their family members : A cross-sectional study. Palliative Medicine : A Multiprofessional Journal. 33. 1310-1318.
- Årestedt, L., Persson, C., Ramgard, M., Benzein, E. (2018). Experiences of encounters with healthcare professionals through the lenses of families living with chronic illness. Journal of Clinical Nursing. 27. 836-847.
- Alftberg, Å., Ahlström, G., Nilsen, P., Behm, L., Sandgren, A., et al. (2018). Conversations about Death and Dying with Older People : An Ethnographic Study in Nursing Homes. Healthcare. 6.
- Tryselius, K., Benzein, E., Persson, C. (2018). Ideas of home in palliative care research : a concept analysis. Nursing Forum. 53. 383-391.
- Wallerstedt, B., Behm, L., Alftberg, Å., Sandgren, A., Benzein, E., et al. (2018). Striking a Balance : A Qualitative Study of Next of Kin Participation in the Care of Older Persons in Nursing Homes in Sweden. Healthcare. 6.
- Werkander Harstäde, C., Blomberg, K., Benzein, E., Östlund, U. (2018). Dignity-conserving care actions in palliative care : an integrative review of Swedish research. Scandinavian Journal of Caring Sciences. 32. 8-23.
- Ahlström, G., Nilsen, P., Benzein, E., Behm, L., Wallerstedt, B., et al. (2018). Implementation of knowledge-based palliative care in nursing homes and pre-post post evaluation by cross-over design : a study protocol. BMC Palliative Care. 17.
- Bylund, A., Benzein, E., Sandgren, A. (2017). Stabilizing family life after gastric bypass surgery. International Journal of Qualitative Studies on Health and Well-being. 12.
- Dalteg, T., Sandberg, J., Malm, D., Sandgren, A., Benzein, E. (2017). The heart is a representation of life : an exploration of illness beliefs in couples living with atrial fibrillation. Journal of Clinical Nursing. 26. 3699-3709.
- Möllerberg, M., Sandgren, A., Swahnberg, K., Benzein, E. (2017). Familial Interaction Patterns During the Palliative Phase of a Family Member Living With Cancer. Journal of Hospice and Palliative Nursing. 19. 67-74.
- Dalteg, T., Benzein, E., Sandgren, A., Malm, D., Årestedt, K. (2016). Associations of Emotional Distress and Perceived Health in Persons With Atrial Fibrillation and Their Partners Using the Actor–Partner Interdependence Model. Journal of Family Nursing. 22. 368-391.
- Tranberg, M., Rasmussen, B.H., Fürst, C.J., Friedrichsen, M., Benzein, E., et al. (2016). Möten mellan människor : kulturkrockar i den palliativa vården. Omsorg : Nordisk tidsskrift for Palliativ Medisin. 33. 27-31.
- Persson, C., Benzein, E., Årestedt, K. (2016). Assessing family resources : validation of the Swedish version of the Family Hardiness Index. Scandinavian Journal of Caring Sciences. 30. 845-855.
- Bylund, A., Årestedt, K., Benzein, E., Thorell, A., Persson, C. (2016). Assessment of family functioning : evaluation of the General Functioning Scale in a Swedish Bariatric Sample. Scandinavian Journal of Caring Sciences. 30. 614-622.
- Årestedt, L., Benzein, E., Persson, C., Rämgård, M. (2016). A shared respite : The meaning of place for family well-being in families living with chronic illness. International Journal of Qualitative Studies on Health and Well-being. 11.
- Hörberg, U., Benzein, E., Erlingsson, C., Syrén, S. (2015). Engaging with Families Is a Challenge : Beliefs among Healthcare Professionals in Forensic Psychiatric Care. Nursing Research and Practice. 1-10.
- Rahmqvist Linnarsson, J., Benzein, E., Årestedt, K. (2015). Nurses' views of forensic care in emergency departments and their attitudes, and involvement of family members. Journal of Clinical Nursing. 24. 266-274.
- Årestedt, L., Persson, C., Benzein, E. (2015). Families Living With Chronic Illness : Beliefs About Illness, Family, and Health Care. Journal of Family Nursing. 21. 206-231.
- Benzein, E., Olin, C., Persson, C. (2015). ‘You put it all together’ : families' evaluation of participating in family health conversations. Scandinavian Journal of Caring Sciences. 29. 136-144.
- Årestedt, L., Persson, C., Benzein, E. (2014). Living as a family in the midst of chronic illness. Scandinavian Journal of Caring Sciences. 28. 29-37.
- Edback, M.P., Lindberg, M., Benzein, E., Årestedt, K. (2014). Social support : an important factor for quality of life in women with hirsutism. Health and Quality of Life Outcomes. 12.
- Wallerstedt, B., Andershed, B., Benzein, E. (2014). Family members´caregiving situation in palliative home care when sitting service is received : the understanding of multiple realities. BMJ Supportive & Palliative Care. 12. 425-437.
- Persson, C., Benzein, E. (2014). Family health conversations : how do they support health?. Nursing Research and Practice. Article ID: 547160.
- Dalteg, T., Benzein, E., Sandgren, A., Fridlund, B., Malm, D. (2014). Managing uncertainty in couples living with atrial fibrillation. Journal of Cardiovascular Nursing. 29. E1-E10.
- Bylund, A., Benzein, E., Persson, C. (2013). Creating a New Sense of We-ness : Family Functioning in Relation to Gastric Bypass Surgery. BARIATRIC SURGICAL PRACTICE AND PATIENT CARE. 8. 152-160.
- Henriksson, A., Årestedt, K., Benzein, E., Ternestedt, B., Andershed, B. (2013). Effects of a support group programme for patients with life-threatening illness during ongoing palliative care. Palliative Medicine : A Multiprofessional Journal. 27. 257-264.
- Rahmqvist Linnarsson, J., Benzein, E., Årestedt, K., Erlingsson, C. (2013). Preparedness to care for victims of violence and their families in emergency departments. Emergency Medicine Journal. 30. 198-201.
- Bergdahl, E., Benzein, E., Ternestedt, B., Elmberger, E., Andershed, B. (2013). Co-creating possibilities for patients in palliative care to reach vital goals : a multiple case study of home-care nursing encounters. Nursing Inquiry. 20. 341-351.
- Palmetun Ekbäck, M., Lindberg, M., Benzein, E., Årestedt, K. (2013). Health-Related Quality of Life, Depression and Anxiety Correlate with the Degree of Hirsutism. Dermatology. 227. 278-284.
- Ekback, M., Benzein, E., Lindberg, M., Årestedt, K. (2013). The Swedish version of the multidimensional scale of perceived social support (MSPSS) : a psychometric evaluation study in women with hirsutism and nursing students. Health and Quality of Life Outcomes. 11.
- Henriksson, A., Andershed, B., Benzein, E., Årestedt, K. (2012). Adaptation and psychometric evaluation of the Preparedness for Caregiving Scale, Caregiver Competence Scale and Rewards of Caregiving Scale in a sample of Swedish family members of patients with life-threatening illness. Palliative Medicine : A Multiprofessional Journal. 26. 930-938.
- Wallerstedt, B., Sahlberg Blom, E., Benzein, E., Andershed, B. (2012). Identification and documentation of persons being in palliative phase regardless of age, diagnosis and places of care, and their use of a sitting service at the end of life. Scandinavian Journal of Caring Sciences. 26. 561-568.
- Henriksson, A., Benzein, E., Ternestedt, B., Andershed, B. (2011). Meeting needs of family members of persons with life-threatening illness : A support group program during ongoing palliative care. Palliative & Supportive Care. 9. 263-271.
- Saveman, B., Benzein, E., Engström, Å., Årestedt, K. (2011). Refinement and psychometric revalidation of the instrument : Families' Importance in Nursing Care - Nurses' Attitudes (FINC-NA). Journal of Family Nursing. 17. 312-329.
- Palmetun Ekbäck, M., Engfeldt, P., Benzein, E. (2011). We feel rejected - experiences of women with hirsutism consulting physicians.. Journal of Psychosomatic Obstetrics and Gynaecology. 32. 157-159.
- Wallerstedt, B., Benzein, E., Andershed, B. (2011). Sharing living and dying : A balancing act between vulnerability and a sense of security. Enrolled nurses’ experiences of working in the sitting service for dying patients at homesafety.. Palliative & Supportive Care. 9. 295-303.
- Dalteg, T., Benzein, E., Fridlund, B., Malm, D. (2011). Cardiac Disease and its Consequences on the Partner Relationship : A Systematic Review. European Journal of Cardiovascular Nursing. 10. 140-149.
- Bergdahl, E., Benzein, E., Ternestedt, B., Andershed, B. (2011). Development of nurses´ abilities to reflect on how to create good caring relationships with patients in palliative care : an action research approach. Nursing Inquiry. 18. 111-122.
- Rask, M., Malm, D., Kristofferzon,, M., Roxberg, Å., Svedberg, P., et al. (2010). Validity and Reliability of a Swedish Version of the Relationship Assessment Scale (RAS) – Pilot Study. Canadian Journal of Cardiovascular Nursing. 20. 16-21.
- Söderström, I., Saveman, B., Hagberg, M., Benzein, E. (2009). Family adaptation in relation to a family member's stay in ICU. Intensive & Critical Care Nursing. 25. 250-257.
- Ekbäck, M., Wijma, K., Benzein, E. (2009). It is always on my mind : Women’s experiences of their body when living with hirsutism. Health Care for Women International. 30. 358-372.
- Oscarsson, M., Wijma, B., Benzein, E. (2008). "I do not needto... I do not want to... I do not give it priority..." : why women choose not to attend cervical cancer screening. Health Expectations. 11. 26-34.
- Oscarsson, M., Wijma, B., Benzein, E. (2008). Non-attendance in a cervical cancer screening program - What happens if women’s requirements are met. Health Care for Women International. 29. 183-197.
- Oscarsson, M., Benzein, E., Wijma, B. (2008). Reasons for non-attendance at cervical screening as reported by non.attendees in Sweden. Journal of Psychosomatic Obstetrics and Gynaecology. 29. 23-31.
- Benzein, E., Johansson, P., Årestedt, K., Berg, A., Saveman, B. (2008). Families' Importance in Nursing Care: Nurses' Attitudes An Instrument Development. Journal of Family Nursing. 14. 97-114.
- Benzein, E., Johansson, P., Årestedt, K., Saveman, B. (2008). Nurses' Attitudes About the Importance of Families in Nursing Care: A Survey of Swedish Nurses. Journal of Family Nursing. 14. 162-180.
- Benzein, E., Hagberg, M., Saveman, B. (2008). Being appropriately unusual - a challenge for nurses in health promoting conversations with families. Nursing Inquiry. 15. 106-115.
- Benzein, E., Saveman, B. (2008). Health-promoting conversations about hope and suffering with couples in palliative care. International Journal of Palliative Nursing. 14. 439-445.
- Oscarsson, M., Wijma, B., Benzein, E. (2007). The first pelvic examination – a transition into womanhood. Journal of Psychosomatic Obstetrics and Gynaecology. 28. 7-12.
- Oscarsson, M., Benzein, E., Wijma, B., Carlsson, P. (2007). Promotion of cervical screening among non-attendees - A partial cost-effectiveness analysis. European Journal of Cancer Prevention. 16. 559-63.
- Syrén, S., Saveman, B., Benzein, E. (2006). Being a family in the midst of living and dying. Journal of palliative care. 22. 26-32.
- Benzein, E., Saveman, B. (2006). 2nd Nordic family Nursing Conference in Kalmar, Sweden - A brief report. Journal of Family Nursing. 12. 344-345.
- Söderström, I., Saveman, B., Benzein, E. (2006). Interactions between family members and staff in intensive care units - An observation and interview study. International journal of nursing studies. 43. 707-716.
- Saveman, B., Mahlen, C.D., Benzein, E. (2005). Nursing students' beliefs about families in nursing care. Nurse education today. 25. 480-486.
- Benzein, E., Berg, A. (2005). The level of and relation between hope, hopelessness and fatigue in patients and family members in palliative care. Palliative medicine. 19 (3). 234-240.
- Strand, M., Benzein, E., Saveman, B. (2005). Commentary on Strand ML, Benzein E & Saveman BI (2004) Violence in the care of adult persons with intellectual disabilities. Journal of Clinical Nursing 13, 506-514 – Response. Journal of clinical nursing. 14 (7). 909-910.
- Benzein, E., Johansson, B., Saveman, B. (2004). Families in home care – a resource or a burden? District nurses´ beliefs. Journal of Clinical Nursing. 13. 867-875.
- Strand, M., Benzein, E., Saveman, B. (2004). Violence in the care of adult persons with intellectual disabilities. Journal of Clinical Nursing. 13. 506-514.
- Oscarsson, M., Benzein, E. (2002). Women's experiences of pelvic examination: an interview study. Journal of psychosomatic obstetrics and gynaecology. 23. 17-25.
- Benzein, E., Norberg, A., Saveman, B. (2001). The meaning of the lived experience of hope in patients with cancer in palliative home care. Palliative Medicine. 15. 117-126.
- Saveman, B., Benzein, E. (2001). Here come the Swedes! A report on the dramatic and rapid evolution of family-focused nursing i Sweden. Journal of Family Nursing. 7. 303-310.
- Benzein, E., Saveman, B. (2000). Reviews the videotape ‘How to do a 15 minute (or less) family interview’, produced by Lorraine M. Wright and Maureen Leahey. Journal of Family Nursing. 6(4). 405-407.
- Benzein, E., Saveman, B. (2000). The meaning of hope in healty, nonreligious Swedes. Western Journal of Nursing Research. 22(3). 303-319.
- Benzein, E., Saveman, B. (2000). Hope within cancer patients undergoing palliative care: A systematic literature review. Recent Advances and Research Updates in medicine. 1(1). 89-96.
- Benzein, E., Saveman, B. (1998). Nurses´ perception of hope in patients with cancer: A palliative care perspective. Cancer Nursing. 21(1). 10-16.
- Benzein, E., Norberg, A., Saveman, B. (1998). Hope - Future imagined reality. The meaning of hope as described by a group of healthy Pentecostalists. Journal of Advanced Nursing. 28(5). 1063-1070.
- Benzein, E., Saveman, B. (1998). One step towards the understanding of hope: A concept analysis. International Journal of Nursing Studies. 35. 322-329.
- Benzein, E., Norberg, A., Saveman, B. (1997). Limitations of The Sense of Coherence Scale in a Swedish Pentecostal Population. Scandinavian Journal of Caring Sciences. 11. 139-144.
Conference paper (Refereed)
- Oscarsson, M., Benzein, E., Wijma, B. (2007). Därför väljer kvinnor att avstå gynekologisk cellprovskontroll. Reproduktiv och perinatal omvårdnad, SvenskabBarnmorskeförbundet, Stockholm.
- Oscarsson, M., Wijma, B., Benzein, E. (2007). Individuellt utformade åtgärder ökar deltagandet i gynekologisk cellprovskontroll. Nordisk Jordemor Kongress, International confederation of midwives, Åbo Finland.
- Benzein, E., Johansson, P., Saveman, B. (2005). The significance of families in nursing care. 7th International Family Nursing Conference : Opening Spaces: Inviting Dialogue in Family Nursing.
- Oscarsson, M., Benzein, E., Wijma, B. (2004). Den första gynekologiska undersökningen. Forskningskonferens, reproduktiv och perinatal omvårdnad, Svenska Barnmorskeförbundet, Uppsala.
Article, review/survey (Refereed)
Article in journal (Other academic)
- Möllerberg, M., Sandgren, A., Swahnberg, K., Benzein, E. (2017). Familial interaction patterns during the palliative phase of a family member living with cancer. European Journal of Cancer. 72. S162-S162.
- Dalteg, T., Sandberg, J.S.J., Malm, D.M.D., Sandgren, A., Benzein, E. (2017). The heart is a representation of life : an exploration of illness beliefs in couples living with atrial fibrillation. European Journal of Cardiovascular Nursing. 16. S41-S41.
- Hommerberg, C., Gustafsson, A.W., Benzein, E., Sandgren, A., Semino, E., et al. (2016). Rendering the ungraspable graspable : the use of metaphors in Swedish palliative cancer care. Palliative Medicine : A Multiprofessional Journal. 30. NP364-NP364.
- Benzein, E. (2013). Nurses' perspective of hope in cancer care. European Journal of Cancer. 49. S49-S49.
- Söderström, I., Benzein, E., Saveman, B. (2003). Nurses´ experiences of interactions with family members in intensive care units. Scandinavian Journal of Caring Sciences. 17(2). 185-192.
Conference paper (Other academic)
- Wallerstedt, B., Schildmeijer, K., Benzein, E., Sandgren, A. (2017). Supporting QoL versus "having nothing more to do" : staff´s perceptions of palliative care. Presented at the 15th World Congress of the European Association for Palliative Care (EAPC), Madrid, Spain, May 18-20, 2017.
- Johansson, P., Saveman, B., Benzein, E. (2005). Familjers betydelse i omvårdnad (Konferens abstrakt). Vårdstämman 2005.
Chapter in book (Other academic)
- Benzein, E., Erlingsson, C., Hagberg, M., Saveman, B. (2017). Hälsostödjande familjesamtal. Att möta familjer inom vård och omsorg. Lund, Studentlitteratur AB. 65-86.
- Benzein, E., Persson, C., Saveman, B., Syrén, S. (2017). Metoder inom familjecentrerad forskning. Att möta familjer inom vård och omsorg. Lund, Studentlitteratur AB. 107-122.
- Benzein, E., Hagberg, M., Saveman, B. (2017). Teoretiska utgångspunkter för familjefokuserad omvårdnad. Att möta familjer inom vård och omsorg. Lund, Studentlitteratur AB. 33-52.
- Benzein, E., Hagberg, M., Saveman, B. (2017). Varför ska familjen ses som en enhet?. Att möta familjer inom vård och omsorg. Lund, Studentlitteratur AB. 27-32.
- Persson, C., Benzein, E., Saveman, B., Syrén, S. (2017). Forskningsrön kring Hälsostödjande familjesamtal. Att möta familjer inom vård och omsorg. Lund, Studentlitteratur AB. 87-106.
- Benzein, E., Hagberg, M., Saveman, B. (2017). Relationen mellan familj och sjuksköterska - ett systematiskt förhållningssätt. Att möta familjer inom vård och omsorg. Lund, Studentlitteratur AB. 53-64.
- Benzein, E. (2013). Hopp. Palliativ vård : begrepp & perspektiv i teori och praktik. Lund, Studentlitteratur AB. 261-268.
- Benzein, E. (2013). Hälsostödjande familjesamtal. Palliativ vård : begrepp & perspektiv i teori och praktik. Lund, Studentlitteratur AB. 453-464.
- Benzein, E. (2012). Hopp. Vårdvetenskapliga begrepp i teori och praktik. Lund, Studentlitteratur AB. 239-248.
- Benzein, E., Erlingsson, C., Hagberg, M., Saveman, B. (2012). Hälsostödjande familjesamtal. Att möta familjer inom vård och omsorg. Lund, Studentlitteratur AB. 59-78.
- Benzein, E., Hagberg, M., Saveman, B. (2009). Familj och sociala relationer.. Omvårdnadens grunder. Studentlitteratur AB. 65-84.
- Benzein, E. (2004). Att uppleva hopp. Att vara och vårda äldre - man har ju sina krämpor.. Lund, Studentlitteratur.
- Benzein, E., Saveman, B. (2004). Att vara närstående till person som drabbats av ohälsa. Närståendes behov. Stockholm, Svensk Sjuksköterskeförening.
Doctoral thesis, monograph (Other academic)
Report (Other academic)
- Johansson, P., Benzein, E., Saveman, B. (2007). Kan någon annan tala om hur jag mår? : En studie med patienter, familjemedlemmar och personal om skattning och hantering av sjukdomsrelaterade symtom vid avancerad cancer.. Humanvetenskapliga institutionen. 49.
- Johansson, P., Benzein, E., Saveman, B. (2006). Sjuksköterskors inställning till familjers betydelse i omvårdnaden. Humanvetenskapliga institutionen. 45.
- Benzein, E., Johansson, P. (2004). Utvärdering av PRIVO:s verksamhet : slutrapport 2004-05-20. Humanvetenskapliga institutionen. 74.
- Benzein, E., Saveman, B. (2004). Family members of persons afflicted by ill health. The Swedish Society of Nursing.
- Benzein, E., Rosen, A. (2000). Palliativt rådgivningsteam inom den sammanhållna hälos- och sjukvården i norr - en utvärderingsrapport.. Kalmar, Högskolan i Kalmar.
- Benzein, E., Saveman, B. (1999). Rehab 300 - samverkan i vården. Slutrapport. Kalmar, Högskolan i Kalmar.
- Benzein, E., Saveman, B. (1997). Samverkan ivårdkedjan. Utvärdering.. Kalmar, Högskolan i Kalmar.
- Benzein, E., Saveman, B. (1997). Rehab 300 - spirapärm. Delrapport.. Kalmar, Högskolan i Kalmar.
Article, review/survey (Other academic)
- Ternestedt, B., Andershed, B., Benzein, E., Norberg, A., Sahlberg Blom, E. (2009). Ett vårdvetenskapligt perspektiv på forskning i livets slutskede – erfarenheter från Sverige. Omsorg : Nordisk tidsskrift for Palliativ Medisin. Oslo, Rådet for omsorg for alvorlig syke og døende, Norske kreftforening. 19-22.
Manuscript (preprint) (Other academic)
- Bylund, A., Benzein, E., Thorell, A., Persson, C. Associations between family functioning, weight loss, sex and Health-Related Quality of Life outcomes two years after gastric bypass surgery.
- Rahmqvist Linnarsson, J., Benzein, E., Erlingsson, C. Vicarious victimization in the aftermath of violence : a family member´s experience in the emergency department.
Article in journal (Other (popular science, discussion, etc.))
- Hommerberg, C., Gustafsson, A.W., Benzein, E., Sandgren, A. (2016). Metaforer i palliativ cancervård. Palliativ vård: tidskriften för palliativ vård i Sverige. 36-37.
- Benzein, E., Humanvetenskapliga Institutionen, H.I.K. (2009). Familjefokuserad omvårdnad – ett strategidokument.. Högskolan i Kalmar.
- Benzein, E., Berg, A. (2003). The Swedish version of Herth Hope Index – an instrument for palliative care. Scandinavian Journal of Caring Sciences. 17.
